Mar 25, 2023·edited Mar 25, 2023Liked by Shannan Martin
I cried when I read this -- for Cal (who probably doesn't need my tears, because it sounds like he's doing great!); for Lyndsey and the work she's done (I just ordered her book); and last of all, for myself. I started receiving SSD in 2016, but began experiencing chronic health issues in 2013. I've always been active in my community and loved spending time with my husband and my friends, listening to live music, sharing a meal or just chatting. Now, I often feel invisible, and can no longer do many of the things I once did. I'm fortunate that I still have a handful of friends who check in with me, a husband who loves me unconditionally and takes good care of me, and illnesses that have certainly changed my life, but not taken it. I know I am blessed, but sometimes I find myself getting impatient and angry with my body, as well as the healthcare system. It's frustrating to have a chronic illness or three, even when you know you're one of the lucky ones with insurance and a roof over your head!
I also didn't know this about Calvin, and feel so, so relieved that his meds are working again (even as I recognize the dream/hope of leaving them behind 😕). Autoimmunity is so confusing and sometimes scary. Solidarity and admiration for Calvin!
And thank you again for sharing my book and the interview! (It has strangely met several of my author friends at particularly relevant times of life.)
So, your words and this interview; well, you OPENED windows for me. The community concept of living with chronic illness is nothing short of revolutionary, as well as creative, compassionate, enlightening, and hopeful. Thank you to you both!!
Thank you both for sharing this conversation. The book seems to be a timely gift. I look forward to reading it!
Thankful to Calvin for allowing you to share his story. What a wonderful gift that he has a mother (and father and siblings) coming alongside him as he makes his way in life. It is always hard to witness our children in pain- but what a strength to have parents and a family to help carry you through. May he continue to chase his dreams and thrive. God bless you and your family Shannan
Thanks for this, Shannan, Cal and Lyndsey. I have several low-level chronic things that are in no-way life threatening, but are always with me. Those few lines from Lyndsey are perfect. So pleased Cal is back doing all the things he loves xx
I cried when I read this -- for Cal (who probably doesn't need my tears, because it sounds like he's doing great!); for Lyndsey and the work she's done (I just ordered her book); and last of all, for myself. I started receiving SSD in 2016, but began experiencing chronic health issues in 2013. I've always been active in my community and loved spending time with my husband and my friends, listening to live music, sharing a meal or just chatting. Now, I often feel invisible, and can no longer do many of the things I once did. I'm fortunate that I still have a handful of friends who check in with me, a husband who loves me unconditionally and takes good care of me, and illnesses that have certainly changed my life, but not taken it. I know I am blessed, but sometimes I find myself getting impatient and angry with my body, as well as the healthcare system. It's frustrating to have a chronic illness or three, even when you know you're one of the lucky ones with insurance and a roof over your head!
Wow, I didn’t know any of this about Calvin ❤️🩹 and that book cover is gorgeous. Adding it to my TBR list!
I also didn't know this about Calvin, and feel so, so relieved that his meds are working again (even as I recognize the dream/hope of leaving them behind 😕). Autoimmunity is so confusing and sometimes scary. Solidarity and admiration for Calvin!
And thank you again for sharing my book and the interview! (It has strangely met several of my author friends at particularly relevant times of life.)
What a true honor to meet the Soup crew 😊😊
"And that is the story of how an acronym has the power to redefine a life." Powerful.
I have my own acronym, and it's so true.
So, your words and this interview; well, you OPENED windows for me. The community concept of living with chronic illness is nothing short of revolutionary, as well as creative, compassionate, enlightening, and hopeful. Thank you to you both!!
Thank you both for sharing this conversation. The book seems to be a timely gift. I look forward to reading it!
Thankful to Calvin for allowing you to share his story. What a wonderful gift that he has a mother (and father and siblings) coming alongside him as he makes his way in life. It is always hard to witness our children in pain- but what a strength to have parents and a family to help carry you through. May he continue to chase his dreams and thrive. God bless you and your family Shannan
This is a balm for my heart and weary body today. Beautiful. Hopeful.
Thanks for this, Shannan, Cal and Lyndsey. I have several low-level chronic things that are in no-way life threatening, but are always with me. Those few lines from Lyndsey are perfect. So pleased Cal is back doing all the things he loves xx